Please use this identifier to cite or link to this item:
https://hdl.handle.net/10316/45402
Title: | Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: do family and social relationships matter? | Authors: | Quitmann, Julia Rohenkohl, Anja Sommer, Rachel Bullinger, Monika Silva, Neuza |
Keywords: | Quality of Life; Extent and direction of parent-child discrepancies; Parent-child dyadic approach; Parental burden; Growth hormone deficiency; Idiopathic short stature; Social support | Issue Date: | 2016 | Citation: | Quitmann, J., Rohenkohl, A., Sommer, R., Bullinger, M., & Silva, N. (2016). Explaining parent-child (dis)agreement in generic and short stature-specific health-related quality of life reports: Do family and social relationships matter? Health and Quality of Life Outcomes, 14, 150. doi:10.1186/s12955-016-0553-0 | Serial title, monograph or event: | Health and Quality of Life Outcomes | Volume: | 14 | Issue: | 1 | Abstract: | Background: In the context of health-related quality of life (HrQoL) assessment in pediatric short stature, the present study aimed to examine the levels of agreement/disagreement between parents’ and children’s reports of generic and condition-specific HrQoL, and to identify socio-demographic, clinical and psychosocial variables associated with the extent and direction of parent-child discrepancies. Methods: This study was part of the retest phase of the QoLISSY project, which was a multicenter study conducted simultaneously in France, Germany, Spain, Sweden and UK. The sample comprised 137 dyads of children/adolescents between 8 and 18 years of age, diagnosed with growth hormone deficiency (GHD) or idiopathic short stature (ISS), and one of their parents. The participants completed child- and parent-reported questionnaires on generic (KIDSCREEN-10 Index) and condition-specific HrQoL (QoLISSY Core Module). Children/adolescents also reported on social support (Oslo 3-items Social Support Scale) and parents assessed the parent-child relationships (Parental Role subscale of the Social Adjustment Scale) and burden of short stature on parents (QoLISSY- additional module). Results: The parent-child agreement on reported HrQoL was strong (intraclass correlation coefficients between .59 and .80). The rates of parent-child discrepancies were 61.5 % for generic and 35.2 % for condition-specific HrQoL, with the parents being more prone to report lower generic (42.3 %) and condition-specific HrQoL (23.7 %) than their children. The extent of discrepancies was better explained by family and social relationships than by clinical and socio-demographic variables: poorer parent-child relationships and better children’s social support were associated with larger discrepancies in generic HrQoL, while more parental burden was associated with larger discrepancies in condition-specific HrQoL reports. Regarding the direction of discrepancies, higher parental burden was significantly associated with parents’ underrating, and better children’s social support was significantly associated with parents’ overrating of condition-specific HrQoL. Conclusions: Routine assessment of pediatric HrQoL in healthcare and research contexts should include child- and parent-reported data as complementary sources of information, and also consider the family and social context. | URI: | https://hdl.handle.net/10316/45402 | DOI: | 10.1186/s12955-016-0553-0 | Rights: | openAccess |
Appears in Collections: | FPCEUC - Artigos em Revistas Internacionais |
Files in This Item:
File | Description | Size | Format | |
---|---|---|---|---|
Explaining parent-child (dis)agreement in HrQoL.pdf | 531.27 kB | Adobe PDF | View/Open |
SCOPUSTM
Citations
30
checked on Aug 26, 2024
WEB OF SCIENCETM
Citations
5
26
checked on Aug 2, 2024
Page view(s)
380
checked on Aug 27, 2024
Download(s)
235
checked on Aug 27, 2024
Google ScholarTM
Check
Altmetric
Altmetric
Items in DSpace are protected by copyright, with all rights reserved, unless otherwise indicated.