Please use this identifier to cite or link to this item: https://hdl.handle.net/10316/113169
DC FieldValueLanguage
dc.contributor.authorJacinto, Miguel-
dc.contributor.authorRodrigues, Filipe-
dc.contributor.authorMonteiro, Diogo-
dc.contributor.authorAntunes, Raul-
dc.contributor.authorFerreira, José Pedro-
dc.contributor.authorMatos, Rui-
dc.contributor.authorCampos, Maria João-
dc.date.accessioned2024-02-07T14:26:03Z-
dc.date.available2024-02-07T14:26:03Z-
dc.date.issued2023-06-14-
dc.identifier.issn2227-9032pt
dc.identifier.urihttps://hdl.handle.net/10316/113169-
dc.description.abstractAssessing quality of life (QoL) is important to provide personalized and individualized support plans with the purpose of improving personal outcomes. Based on the conceptual model of QoL, the aim of this study was to assess the congruence between the perceptions of institutionalized individuals with intellectual and developmental disabilities (IDD) and the perception of a third party, regarding QoL. Forty-two individuals participated in this study, including twenty-one with mild to severe IDD and their family members/caregiver/reference technician, who responded to the Personal Outcomes Scale (Portuguese version). Significant differences (p < 0.05) were found between reports in the personal development (t = -2.26; p = 0.024), emotional well-being (t = -2.263; p = 0.024), physical well-being (t = -2.491; p = 0.013) and total QoL (t = -2.331; p = 0.02). The results further show that most third-party reports tend to undervalue the QoL of the individual with IDD, and that there is no congruence in any of the QoL domains. The inclusion of self-reports in the QoL assessment is important. In addition to the assessment of third-party reports, the process of making decisions appropriate to the context and individual characteristics is equally important. On the other hand, the inclusion of third-party reports is an opportunity to promote communication among all stakeholders, recognize and discuss differences, and promote QoL, not only of individuals with IDD, but also of families.pt
dc.language.isoengpt
dc.publisherMDPIpt
dc.relationUIDB/04748/2020pt
dc.relationUIDP/04213/2020pt
dc.rightsopenAccesspt
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt
dc.subjectcaregivers/family memberspt
dc.subjectintellectual disabilitypt
dc.subjectEscala Pessoal de Resultadospt
dc.subjectPersonal Outcomes Scalept
dc.subjectself-reportspt
dc.titleQuality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reportspt
dc.typearticle-
degois.publication.firstPage1748pt
degois.publication.issue12pt
degois.publication.titleHealthcare (Switzerland)pt
dc.peerreviewedyespt
dc.identifier.doi10.3390/healthcare11121748pt
degois.publication.volume11pt
dc.date.embargo2023-06-14*
uc.date.periodoEmbargo0pt
item.grantfulltextopen-
item.cerifentitytypePublications-
item.languageiso639-1en-
item.openairetypearticle-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.fulltextCom Texto completo-
crisitem.author.researchunitCIDAF - Research Unit for Sport and Physical Activity-
crisitem.author.orcid0000-0002-4427-3276-
crisitem.author.orcid0000-0003-2148-3534-
Appears in Collections:I&D CIDAF - Artigos em Revistas Internacionais
FCDEF - Artigos em Revistas Internacionais
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This item is licensed under a Creative Commons License Creative Commons