Please use this identifier to cite or link to this item:
https://hdl.handle.net/10316/111619
DC Field | Value | Language |
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dc.contributor.author | Ingen-Housz-Oro, S. | - |
dc.contributor.author | Schmidt, V. | - |
dc.contributor.author | Ameri, M. M. | - |
dc.contributor.author | Abe, R. | - |
dc.contributor.author | Brassard, A. | - |
dc.contributor.author | Mostaghimi, A. | - |
dc.contributor.author | Paller, A. S. | - |
dc.contributor.author | Romano, A. | - |
dc.contributor.author | Didona, B. | - |
dc.contributor.author | Kaffenberger, B. H. | - |
dc.contributor.author | Ben Said, B. | - |
dc.contributor.author | Thong, B. Y. H. | - |
dc.contributor.author | Ramsay, B. | - |
dc.contributor.author | Brezinova, E. | - |
dc.contributor.author | Milpied, B. | - |
dc.contributor.author | Mortz, C. G. | - |
dc.contributor.author | Chu, C. Y. | - |
dc.contributor.author | Sotozono, C. | - |
dc.contributor.author | Gueudry, J. | - |
dc.contributor.author | Fortune, D. G. | - |
dc.contributor.author | Dridi, S. M. | - |
dc.contributor.author | Tartar, D. | - |
dc.contributor.author | Do-Pham, G. | - |
dc.contributor.author | Gabison, E. | - |
dc.contributor.author | Phillips, E. J. | - |
dc.contributor.author | Lewis, F. | - |
dc.contributor.author | Salavastru, C. | - |
dc.contributor.author | Horvath, B. | - |
dc.contributor.author | Dart, J. | - |
dc.contributor.author | Setterfield, J. | - |
dc.contributor.author | Newman, J. | - |
dc.contributor.author | Schulz, J. T. | - |
dc.contributor.author | Delcampe, A. | - |
dc.contributor.author | Brockow, K. | - |
dc.contributor.author | Seminario-Vidal, L. | - |
dc.contributor.author | Jörg, L. | - |
dc.contributor.author | Watson, M. P. | - |
dc.contributor.author | Gonçalo, M. | - |
dc.contributor.author | Lucas, M. C. Marco de | - |
dc.contributor.author | Torres, M. | - |
dc.contributor.author | Noe, M. H. | - |
dc.contributor.author | Hama, N. | - |
dc.contributor.author | Shear, N. H. | - |
dc.contributor.author | O'Reilly, P. | - |
dc.contributor.author | Wolkenstein, P. | - |
dc.contributor.author | Romanelli, P. | - |
dc.contributor.author | Dodiuk-Gad, R. P. | - |
dc.contributor.author | Micheletti, R. G. | - |
dc.contributor.author | Tiplica, G. S. | - |
dc.contributor.author | Sheridan, R. | - |
dc.contributor.author | Rauz, S. | - |
dc.contributor.author | Ahmad, S. | - |
dc.contributor.author | Chua, S. L. | - |
dc.contributor.author | Flynn, T. H. | - |
dc.contributor.author | Pichler, W. | - |
dc.contributor.author | Le, S. T. | - |
dc.contributor.author | Maverakis, E. | - |
dc.contributor.author | Walsh, N. | - |
dc.contributor.author | French, L. E. | - |
dc.contributor.author | Brüggen, M. C. | - |
dc.date.accessioned | 2024-01-08T18:04:49Z | - |
dc.date.available | 2024-01-08T18:04:49Z | - |
dc.date.issued | 2023-02-22 | - |
dc.identifier.issn | 1750-1172 | pt |
dc.identifier.uri | https://hdl.handle.net/10316/111619 | - |
dc.description.abstract | Background Long-term sequelae are frequent and often disabling after epidermal necrolysis (Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN)). However, consensus on the modalities of management of these sequelae is lacking. Objectives We conducted an international multicentric DELPHI exercise to establish a multidisciplinary expert consensus to standardize recommendations regarding management of SJS/TEN sequelae. Methods Participants were sent a survey via the online tool “Survey Monkey” consisting of 54 statements organized into 8 topics: general recommendations, professionals involved, skin, oral mucosa and teeth, eyes, genital area, mental health, and allergy workup. Participants evaluated the level of appropriateness of each statement on a scale of 1 (extremely inappropriate) to 9 (extremely appropriate). Results were analyzed according to the RAND/UCLA Appropriateness Method. Results Fifty-two healthcare professionals participated. After the first round, a consensus was obtained for 100% of 54 initially proposed statements (disagreement index < 1). Among them, 50 statements were agreed upon as ‘appropriate’; four statements were considered ‘uncertain’, and ultimately finally discarded. Conclusions Our DELPHI-based expert consensus should help guide physicians in conducting a prolonged multidisciplinary follow-up of sequelae in SJS-TEN. | pt |
dc.language.iso | eng | pt |
dc.publisher | BMJ | pt |
dc.rights | openAccess | pt |
dc.rights.uri | http://creativecommons.org/licenses/by/4.0/ | pt |
dc.subject | Epidermal necrolysis | pt |
dc.subject | Stevens-Johnson syndrome | pt |
dc.subject | Toxic epidermal necrolysis | pt |
dc.subject | Sequelae | pt |
dc.subject | Quality of life | pt |
dc.subject | Delphi | pt |
dc.subject | Consensus | pt |
dc.subject.mesh | Humans | pt |
dc.subject.mesh | Consensus | pt |
dc.subject.mesh | Skin | pt |
dc.subject.mesh | Disease Progression | pt |
dc.subject.mesh | Stevens-Johnson Syndrome | pt |
dc.title | Post-acute phase and sequelae management of epidermal necrolysis: an international, multidisciplinary DELPHI-based consensus | pt |
dc.type | article | - |
degois.publication.firstPage | 33 | pt |
degois.publication.issue | 1 | pt |
degois.publication.title | Orphanet Journal of Rare Diseases | pt |
dc.peerreviewed | yes | pt |
dc.identifier.doi | 10.1186/s13023-023-02631-7 | pt |
degois.publication.volume | 18 | pt |
dc.date.embargo | 2023-02-22 | * |
uc.date.periodoEmbargo | 0 | pt |
item.grantfulltext | open | - |
item.cerifentitytype | Publications | - |
item.languageiso639-1 | en | - |
item.openairetype | article | - |
item.openairecristype | http://purl.org/coar/resource_type/c_18cf | - |
item.fulltext | Com Texto completo | - |
crisitem.author.orcid | 0000-0001-6842-1360 | - |
Appears in Collections: | FMUC Medicina - Artigos em Revistas Internacionais |
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File | Description | Size | Format | |
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Postacute-phase-and-sequelae-management-of-epidermal-necrolysis-an-international-multidisciplinary-DELPHIbased-consensusOrphanet-Journal-of-Rare-Diseases.pdf | 913.38 kB | Adobe PDF | View/Open |
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