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Title: The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
Authors: Abreu, Liliana 
Nunes, João Arriscado 
Taylor, Peter 
Silva, Susana 
Keywords: Health mediators; Health literacy; People-centred care; Integrated care; Asthma
Issue Date: 2018
Publisher: Ubiquity Press
Project: SFRH/BD/78949/2011 
Serial title, monograph or event: International Journal of Integrated Care
Volume: 18
Issue: 2
Abstract: Background: Improvements in asthma integrated care might be achieved through in-depth knowledge about how health literacy is dispersed through a group. This study intends to map out health literacy mediators (those who makes his/her literacy skills available to others for them to accomplish specific literacy purposes) and how they enable self-management skills in patients with asthma. Methods: Twenty interviews were conducted in a Primary Care Center of Porto using the McGill Illness Narrative Interview. Data were thematically analyzed as case-based and process-tracing-oriented. Results: Interviewees with a dense network of mediators revealed a low impact of asthma on their lives, dependence on primary care physician for instrumental support and dependence on family members to provide emotional/pragmatic support. Interviewees who relied on a restricted network of mediators (belonging to formal sources of health services and providing informational support) described episodes of crisis as disruptive and demonstrated a reactive approach to self-management skills. Conclusions: The roles performed by core health mediators (health professionals, family/friends, media) in support of asthma management varied according to patients’ narratives of minimization/disruption, connected to dense/restricted social networks. To clarify the boundaries of responsibility-shifting and to enrich support provided by formal sources of health services and peer education groups is needed.
ISSN: 1568-4156
DOI: 10.5334/ijic.3301
Rights: openAccess
Appears in Collections:I&D CES - Artigos em Revistas Internacionais

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