Please use this identifier to cite or link to this item:
https://hdl.handle.net/10316/45419
DC Field | Value | Language |
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dc.contributor.author | Bullinger, Monika | - |
dc.contributor.author | Quitmann, Julia | - |
dc.contributor.author | Silva, Neuza | - |
dc.contributor.author | Rohenkohl, Anja | - |
dc.contributor.author | Chaplin, John E. | - |
dc.contributor.author | DeBusk, Kendra | - |
dc.contributor.author | Mimoun, Emmanuelle | - |
dc.contributor.author | Feigerlova, Eva | - |
dc.contributor.author | Herdman, Michael | - |
dc.contributor.author | Sanz, Dolores | - |
dc.contributor.author | Wollmann, Hartmut | - |
dc.contributor.author | Pleil, Andreas | - |
dc.contributor.author | Power, Michael | - |
dc.date.accessioned | 2017-12-22T21:31:34Z | - |
dc.date.available | 2017-12-22T21:31:34Z | - |
dc.date.issued | 2014 | - |
dc.identifier.citation | Bullinger, M., Quitmann, J., Silva, N., Rohenkohl, A., Chaplin, J. E., DeBusk, K., Mimoun, E., Feigerlova, E., Herdman, M., Sanz, D., Wollmann, H., Pleil, A., & Power, M. (2014). Cross-cultural equivalence of the patient- and parent-reported Quality of Life in Short Stature Youth (QoLISSY) Questionnaire. Hormone Research in Paediatrics, 82(1), 18-30. doi:10.1159/000358832 | por |
dc.identifier.uri | https://hdl.handle.net/10316/45419 | - |
dc.description.abstract | Background: Testing cross-cultural equivalence of Patient Reported Outcomes requires sufficiently large samples per country, which is difficult to achieve in rare endocrine paediatric conditions. We describe a novel approach to cross-cultural testing of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in five countries by sequentially Taking-One-Country-Out (TOCO) from the total sample and iteratively comparing the resulting psychometric performance. Methods: Development of the QoLISSY proceeded from focus group discussions over pilot testing to field testing in 268 short statured patients and parents. In exploring cross-cultural equivalence the iterative TOCO technique was used to examine and compare validity, reliability and convergence of QoLISSY patient- and parent-ratings in the field test data set, and to predict QoLISSY scores from clinical, socio-demographic and psychosocial variables. Results: Validity and reliability indicators were satisfactory for each sample after iteratively omitting one country. Comparisons with the total sample revealed cross-cultural equivalence in internal consistency and construct validity for patients and parents, high inter-rater agreement and a substantial proportion of QoLISSY variance explained by predictors. Conclusion: The TOCO technique is a powerful method to overcome problems of country specific testing of PRO instruments. It provides an empirical support to QoLISSY´s cross-cultural equivalence and is recommended for future research. | por |
dc.description.sponsorship | This study was funded by Pfizer Limited. Andreas Pleil is at the time of this study full-time employee of Pfizer Inc; Hartmut Wollmann was a full-time employee of Pfizer Inc. No authors received compensation for their contributions to the manuscript. | por |
dc.language.iso | eng | por |
dc.rights | openAccess | por |
dc.subject | Health related quality of life | por |
dc.subject | Short stature | por |
dc.subject | Growth hormone deficiency | por |
dc.subject | Idiopathic short stature | por |
dc.subject | Patient and parent assessment | por |
dc.subject | Outcome research | por |
dc.title | Cross-Cultural Equivalence of the Patient- and Parent-Reported Quality of Life in Short Stature Youth (QoLISSY) Questionnaire | por |
dc.type | article | por |
degois.publication.firstPage | 18 | por |
degois.publication.lastPage | 30 | por |
degois.publication.issue | 1 | por |
degois.publication.title | Hormone Research in Paediatrics | por |
dc.relation.publisherversion | https://www.karger.com/Article/Abstract/358832 | por |
dc.peerreviewed | yes | por |
dc.identifier.doi | 10.1159/000358832 | - |
degois.publication.volume | 82 | por |
item.grantfulltext | open | - |
item.fulltext | Com Texto completo | - |
item.openairetype | article | - |
item.languageiso639-1 | en | - |
item.openairecristype | http://purl.org/coar/resource_type/c_18cf | - |
item.cerifentitytype | Publications | - |
crisitem.author.researchunit | Center for Research in Neuropsychology and Cognitive Behavioral Intervention | - |
crisitem.author.orcid | 0000-0003-4110-9961 | - |
Appears in Collections: | FPCEUC - Artigos em Revistas Internacionais |
Files in This Item:
File | Description | Size | Format | |
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Cross-cultural QoLISSY equivalence.pdf | 543.83 kB | Adobe PDF | View/Open |
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