Please use this identifier to cite or link to this item:
https://hdl.handle.net/10316/45412
DC Field | Value | Language |
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dc.contributor.author | Silva, Neuza | - |
dc.contributor.author | Crespo, Carla | - |
dc.contributor.author | Carona, Carlos | - |
dc.contributor.author | Bullinger, Monika | - |
dc.contributor.author | Canavarro, Maria Cristina | - |
dc.date.accessioned | 2017-12-22T17:25:37Z | - |
dc.date.available | 2017-12-22T17:25:37Z | - |
dc.date.issued | 2015 | - |
dc.identifier.citation | Silva, N., Crespo, C., Carona, C., Bullinger, M., & Canavarro, M. C. (2015). Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in pediatric asthma. Child: Care, Health and Development, 41(1), 112-121. doi:10.1111/cch.12147 | por |
dc.identifier.uri | https://hdl.handle.net/10316/45412 | - |
dc.description.abstract | Introduction. Children’s health-related quality of life (HrQoL) and psychological problems are important outcomes to consider in clinical decision making in pediatric asthma. However, children’s and parents’ reports often differ. The present study aimed to examine the levels of agreement/disagreement between children’s and parents’ reports of HrQoL and psychological problems and to identify socio-demographic, clinical and family variables associated with the extent and direction of (dis)agreement. Method. The sample comprised 279 dyads of Portuguese children with asthma who were between 8 and 18 years of age (M = 12.13; SD = 2.56) and one of their parents. The participants completed self- and proxy-reported questionnaires on pediatric generic HrQoL (KIDSCREEN-10), chronic-generic HrQoL (DISABKIDS-37) and psychological problems (Strengths and Difficulties Questionnaire). Children’s and parents’ perceptions of family relationships were measured with the Family Environment Scale and the caregiving burden was assessed using the Revised Burden Measure. Results. The child-parent agreement on reported HrQoL and psychological problems was poor to moderate (intraclass correlation coefficients between .32 and .47). The rates of child-parent discrepancies ranged between 52.7% (psychological problems) and 68.8% (generic HrQoL), with 50.5% and 31.5% of the parents reporting worse generic and chronic-generic HrQoL, respectively, and 33.3% reporting more psychological problems than their children. The extent and direction of disagreement were better explained by family factors than by socio-demographic and clinical variables: a greater caregiving burden was associated with increased discrepancies in both directions and children’s and parents’ perceptions of less positive family relationships were associated with discrepancies in different directions. Conclusion. Routine assessment of pediatric HrQoL and psychological problems in healthcare and research contexts should include self- and parent-reported data as complementary sources of information, and also consider the family context. The additional cost of conducting a more in-depth assessment of pediatric adaptation outcomes can be offset through more efficient allocation of health resources. | por |
dc.description.sponsorship | This study was supported by the R&D Unit Institute of Cognitive Psychology, Vocational and Social Development of the University of Coimbra (PEst-OE/PSI/UI0192/2011); and by the Portuguese Foundation for Science and Technology (PhD Grant SFRH/BD/69885/2010). | por |
dc.language.iso | eng | por |
dc.relation | FCT (SFRH/BD/69885/2010) | por |
dc.rights | openAccess | por |
dc.subject | Caregiving burden | por |
dc.subject | Child-parent (dis)agreement | por |
dc.subject | Family relationships | por |
dc.subject | Health-related quality of life | por |
dc.subject | Pediatric asthma | por |
dc.subject | Psychological problems | por |
dc.title | Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma | por |
dc.type | article | por |
degois.publication.firstPage | 112 | por |
degois.publication.lastPage | 121 | por |
degois.publication.issue | 1 | por |
degois.publication.title | Child: Care, Health and Development | por |
dc.relation.publisherversion | http://onlinelibrary.wiley.com/doi/10.1111/cch.12147/abstract | por |
dc.peerreviewed | yes | por |
dc.identifier.doi | 10.1111/cch.12147 | - |
degois.publication.volume | 41 | por |
item.fulltext | Com Texto completo | - |
item.openairecristype | http://purl.org/coar/resource_type/c_18cf | - |
item.grantfulltext | open | - |
item.languageiso639-1 | en | - |
item.openairetype | article | - |
item.cerifentitytype | Publications | - |
crisitem.author.researchunit | Center for Research in Neuropsychology and Cognitive Behavioral Intervention (CINEICC) | - |
crisitem.author.researchunit | Center for Research in Neuropsychology and Cognitive Behavioral Intervention (CINEICC) | - |
crisitem.author.researchunit | Center for Research in Neuropsychology and Cognitive Behavioral Intervention (CINEICC) | - |
crisitem.author.parentresearchunit | Faculty of Psychology and Educational Sciences | - |
crisitem.author.parentresearchunit | Faculty of Psychology and Educational Sciences | - |
crisitem.author.parentresearchunit | Faculty of Psychology and Educational Sciences | - |
crisitem.author.orcid | 0000-0003-4110-9961 | - |
crisitem.author.orcid | 0000-0002-3605-3513 | - |
crisitem.author.orcid | 0000-0002-5083-7322 | - |
Appears in Collections: | FPCEUC - Artigos em Revistas Internacionais |
Files in This Item:
File | Description | Size | Format | |
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Child-parent (dis)agreement on adaptation outcomes.pdf | 400.65 kB | Adobe PDF | View/Open |
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