Please use this identifier to cite or link to this item:
https://hdl.handle.net/10316/36315
Title: | Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe? | Authors: | Budin-Ljøsne, Isabelle Mascalzoni, Deborah Soini, Sirpa Machado, Helena Kaye, Jane Bentzen, Heidi Beate Rial-Sebbag, Emmanuelle D'Abramo, Flavio Witt, Michał Schamps, Geneviève Katić, Višnja Krajnovic, Dusanca Harris, Jennifer R. |
Issue Date: | Jun-2016 | Publisher: | Mary Ann Liebert | Project: | info:eu-repo/grantAgreement/EC/FP7/261433/EU info:eu-repo/grantAgreement/EC/FP7/305444/EU info:eu-repo/grantAgreement/EC/FP7/313010/EU BIOTEK2021/238999/O30 info:eu-repo/grantAgreement/EC/H2020/648608/EU |
Serial title, monograph or event: | Biopreservation and Biobanking | Volume: | 14 | Issue: | 3 | Abstract: | There is growing consensus that individual genetic research results that are scientifically robust, analytically valid, and clinically actionable should be offered to research participants. However, the general practice in European research projects is that results are usually not provided to research participants for many reasons. This article reports on the views of European experts and scholars who are members of the European COST Action CHIP ME IS1303 (Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives) regarding challenges to the feedback of individual genetic results to research participants in Europe and potential strategies to address these challenges. | URI: | https://hdl.handle.net/10316/36315 | ISSN: | 1947-5535 1947-5543 |
DOI: | 10.1089/bio.2015.0115 10.1089/bio.2015.0115 |
Rights: | openAccess |
Appears in Collections: | I&D CES - Artigos em Revistas Internacionais |
Files in This Item:
File | Description | Size | Format | |
---|---|---|---|---|
Feedback of Individual Genetic Results to Research Participants Is It Feasible in Europe.pdf | 120.81 kB | Adobe PDF | View/Open |
SCOPUSTM
Citations
24
checked on Oct 14, 2024
WEB OF SCIENCETM
Citations
5
22
checked on Oct 2, 2024
Page view(s) 50
490
checked on Oct 8, 2024
Download(s)
319
checked on Oct 8, 2024
Google ScholarTM
Check
Altmetric
Altmetric
This item is licensed under a Creative Commons License