Please use this identifier to cite or link to this item:
Title: Validation and cultural adaptation of the Integrated Palliative care Outcome Scale (IPOS) for the Portuguese population
Authors: Antunes, Bárbara 
Ferreira, Pedro L. 
Keywords: Patient-centred outcome measures; Palliative care; Outcome measurement; Palliative care outcome scale; Validation
Issue Date: 24-Nov-2020
Publisher: Springer Nature
Project: Calouste Gulbenkian Foundation – Programa Gulbenkian Inovar em Saúde. 
FCT - Grant number PD/BD/113664/2015 
FCT - Grant number PD/0003/2013 
National Institute for Health Research (NIHR) Applied Research Collaboration East of England (ARC EoE) programme 
Serial title, monograph or event: BMC Palliative Care
Volume: 19
Issue: 1
Abstract: Background: To culturally adapt and validate the Integrated Palliative care Outcome Scale to European Portuguese. Methods: Multi-centred observational study with 2 assessment points. Data were collected in nine centres using consecutive sampling. All patients were screened for eligibility. Inclusion criteria: ≥18 years, mentally fit to give consent, diagnosed with an incurable, potentially life-threatening illness, read, write and understand Portuguese. Translation and back translation with independent native speakers blind to the original measure created a Portuguese version, which was culturally adapted using cognitive interviews. For psychometric testing, the COSMIN checklist was followed. Reliability and content validity were assessed for patient and staff versions. Construct and criterion validity were tested for patient version. Results: 1703 individuals were screened between July 1st 2015 and February 2016, 135 (7.9%) were included. Mean age was 66.8 years (SD 12.7), 58 (43%) were female. Most patients (109; 80.7%) had a cancer diagnosis. Cronbach’s alpha showed good internal consistency, 0.657 for patient, 0.705 for staff versions. Intraclass correlation coefficient testing reproducibility revealed very good reliability, 0.794–0.950 for patient and 0.456–0.925 for staff versions. There was good content validity and significant results for construct validity. Physical symptoms were better detected by females. IPOS could discriminate: practical issues in different places of care, based on cancer diagnosis, physical and emotional symptoms based on life expectancy both for patient and professional dimensions, physical and emotional symptoms based on phase of illness, for professional dimensions, and physical symptoms from the patients’ viewpoint. Conclusions: The Portuguese IPOS is a reliable and valid measure.
ISSN: 1472-684X
DOI: 10.1186/s12904-020-00685-z
Rights: openAccess
Appears in Collections:I&D CEISUC - Artigos em Revistas Internacionais
FEUC- Artigos em Revistas Internacionais

Show full item record


checked on Nov 27, 2023


checked on Nov 2, 2023

Page view(s)

checked on Nov 28, 2023


checked on Nov 28, 2023

Google ScholarTM




This item is licensed under a Creative Commons License Creative Commons